Thoughts and illustrations on living on the autism spectrum.
Showing posts with label john prine. Show all posts
Showing posts with label john prine. Show all posts
Sunday, February 20, 2011
Spectrum Soundtrack: Hello In There
John Prine didn’t write “Hello in There” about autism. He wrote it about the elderly - the overlooked, the ignored, the invisible. I am 35 years old. I am not old, and I don’t know how old feels. I shouldn’t understand the harsh truths in this song. But I do understand. I am autistic, and I know how “in there” feels.
Who I am “in there,” doesn’t always make it “out there.” It’s not that I want to stay “in there.” It’s more like the real me gets lost between “in” and “out.”
I get lots of “hello’s.” Hello’s as we pass every morning. Hello’s across the lunch table over pizza. Hello’s that start conversations about Egypt, or movies, or pet goldfish. These are hello’s “out there.” With these hello’s, you may think you know me, but you really only know pieces of me.
Do you know the difference between my polite laugh and my genuine, heartfelt laugh? Do you know what my eyes are saying that my mouth never will? Do you know my hopes or dreams, or anything about me that matters?
If you’re a neurotypical, you’re a natural connector. You find someone, or many someones, to share what’s “in there.” I don’t connect so easily. My desire to socialize switches on and off like the weather. I find it a mystery how to move from small talk to meaningful. Times when I want attention, no one is really listening. Other times, I have someone’s undivided interest, but my mouth can’t find the right words, before that brief window between us closes. Sometimes, even between friends, our closeness remains a chasm. Missed connections, over and over.
I know there are many of us, starved to relate, to belong. Many, who go without. When we fail to connect, we lose so much.
No, it’s not like being without food or water. Yes, we function. We should not be satisfied with functioning. The goal is not a functioning life, but a fulfilling life. Can I fully thrive when the part of me that matters the most, that makes me human and not just a character, remains unknown, and unshared?
We all have a need to be understood. We all have a need to be seen for who we are. When you’re old, or disabled, or otherwise different from the norm, that need can go unmet. We sense fear, ignorance, or ambivalence in others. Even if it’s only subconscious, we sense it, and it puts more distance between us. What’s “in there,” what’s real, stays inside. We save it until we feel safe to share. We wait…
Waiting for someone to say, "Hello in there, hello."
So what is the right “hello in there?” I think it’s a little like being in a hamster ball. If you push too hard, you might push me away. If you don’t push hard enough, it won’t go anywhere. The right “hello” is a push that’s just right. I am autistic, and I have much to share, if you are truly listening.
So if you're walking down the street sometime
And spot some hollow [autistic] eyes,
Please don't just pass 'em by and stare
As if you didn't care. Say, "Hello in there, hello.”
Labels:
asperger's,
autism,
john prine,
socializing,
spectrum soundtrack
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