Thoughts and illustrations on living with Asperger's Syndrome.
Sunday, October 10, 2010
An idealistic pipe dream? Something out of fiction? Nope, it’s the real thing. I had occasion recently to learn about the Camphill movement. I found it compelling, curious, and inspiring, and I wanted to share with you what I learned.
Camphill villages are farming and handcrafting communities that include adults with developmental disabilities, such as autism and Down syndrome. The model was developed in 1939 by Karl Koenig, and today there are more than 100 communities worldwide. Central to the concept is anthroposophy, the idea of respect for the spiritual wholeness of each person and the human possibilities to evolve toward freedom and love.
Are you a bit awe-struck? I must say I am. Here's a relatively little-known organization with progressive solutions to many of our most challenging societal problems, all in one place. Perhaps most impressive is that the abled and disabled are treated as equals. We often say that’s what we most wish for, for autistic persons, the disappearance of different-ness. Camphill is a community in the realest sense. “I stopped seeing people with disabilities, and now I just see people,” commented one service volunteer in the recent Camphill publication, Lilipoh.
Why isn’t Camphill better known? It seems positively utopian in its outlook, and at the same time, somewhat radical. The villages are not licensed treatment facilities. They are supported by donations, grants, sales, and family support. They don’t collect detailed data on outcomes for residents and whether their lives improve. Despite the 70-year history of the movement, there seems to be no scientific comparison with traditional group homes. Indeed, little evidence suggests Camphill does a better job at caring for the disabled.
“The Camphill communities… are widely known of, but little known about; often lauded, sometimes condemned but rarely understood,” according to a review by Baron and Haldane (1991). A study of the 600 Waldorf schools worldwide found “there appears to be no research based evidence to its effectiveness for those with autism or other developmental disability.” (Roberts 2004) Most recently, a study in Ireland compared 29 residents of a Camphill community with 125 residents of a traditional group home. Camphill was found to have higher staff:resident ratios, more homely living areas, and less of an institutional feel, but was not found to be better on a range of other objective measures (Fahey et al. 2010).
At a time when residential homes are needed, expensive, and challenging to operate, we should fully investigate promising alternative models.
Whether or not that happens, the Camphill movement remains fascinating. I plan to keep attuned to the goings-on at my local Camphill branch in Kimberton, PA, perhaps check out a musical performance or pick up some freshly baked cookies at the café. It might be nice to volunteer for a day, get a window into a different rhythm of life, where the food is slow, the workers are like family, and the boundaries between us disappear. If you have the chance to visit a village, I hope you will, too.
For more information, visit camphill.org.
Photo credits: Photo 1 - Wikimedia Commons. Photo 2 - Copyright Lizzie and licensed for reuse under this Creative Commons License